Program Booklet
Thank you Legacy Guardian Peggy Davis.
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Please provide a mobile number and not a landline, if you choose to opt-in. *Standard text message rates may apply.
2023 Conference Agenda
Indicate all the events you will be attending.
If yes, please add below ages of siblings under 18 and number of siblings that are 18+.
PHOTO/VIDEO RELEASE
Please read carefully our photo/video release form and accept or decline. If declining, your family will be unable to participate in any group or individual photos/videos taken at conference. Your registration tag will note "No Pictures" and you may be asked to sit where you won't inadvertently be included in pictures or videos.
I hereby give permission to NBIA Disorders Association to use and distribute (not limited to use in newsletters, guides, brochures, videos, appeals, website and reports) at their discretion, any photographs or videos taken at the Twelfth International NBIA Disorders Association Family Conference, of which I, my friends, or a member of my family may be a part. This release includes all individuals under this family registration.
WAIVER AND ASSUMPTION OF RISK (FOR CHILD under 18 by parents/legal guardians)
I/We are the parent(s) or legal guardian(s) of named individuals, a minor (hereinafter “Child”). Parent voluntarily makes and grants this Waiver and Assumption of Risk in favor of NBIA Disorders Association. including but not limited to employees, contractors, volunteers, agents and all others engaged in efforts on behalf of or at the direction of the aforementioned entity as consideration for Child’s opportunity to use the facilities, equipment, materials and participate in the activities, events, festivities and/or gatherings sponsored by and part of the NBIA Disorders Association family conference; Parent hereby waives and releases any and all claims whether in contract or of personal injury, bodily injury, property damage, damages, losses and/or death that may arise from Child’s aforementioned use or participation, as I understand and recognize that there are certain risks, dangers and perils connected with such use and/or participation, which I hereby acknowledge have been fully explained to me and which I fully understand, and which I accept, assume and undertake after inquiry and investigation of extent, duration, and completeness wholly satisfactory and acceptable to me. I further agree to use my best judgment in permitting Child to engage in these activities, and to fully explain to Child and require compliance with all safety instructions and recommendations, whether oral or written. I hereby certify that I am a competent adult, executing this Waiver of my own free will, being under no compulsion or duress. This Waiver and Assumption of Risk is effective from May 18, 2023 to May 21, 2023 inclusive, and may not be revoked, altered, amended, rescinded or voided without the express prior written consent of NBIA Disorders Association.
If you have anyone on your registration form who will be in the Care Room, a Care Room Information Form must be filled out and sent to ccraig@NBIAdisorders.org before your registration is complete.
WAIVER AND ASSUMPTION OF RISK (FOR ADULT IN CARE ROOM by legal guardian)
I/We voluntarily make and grant this Waiver and Assumption of Risk in favor of NBIA Disorders Association, including but not limited to employees, contractors, volunteers, agents and all others engaged in efforts on behalf of or at the direction of the aforementioned entity as consideration for the opportunity to use the facilities, equipment, materials and participate in the activities, events, festivities and/or gatherings sponsored by and part of the NBIA Disorders Association Family Conference; I/We hereby waive and release any and all claims whether in contract or of personal injury, bodily injury, property damage, damages, losses and/or death that may arise from my aforementioned use or participation, as I/We understand and recognize that there are certain risks, dangers and perils connected with such use and/or participation, which I hereby acknowledge have been fully explained to me and which I fully understand, and which I accept, assume and undertake after inquiry and investigation of extent, duration, and completeness wholly satisfactory and acceptable to me. I/We further agree to use my best judgment in undertaking in these activities, and will faithfully adhere to all safety instructions and recommendations, whether oral or written. I hereby certify that I am a competent adult, executing this Waiver of my own free will, being under no compulsion or duress. This Waiver and Assumption of Risk is effective from May 18, 2023 to May 21, 2023, inclusive, and may not be revoked, altered, amended, rescinded or voided without the express prior written consent of NBIA Disorders Association.
One Person - 175.00 USD
Additional Family Member (same household) - 175.00 USD
NBIA individual or under 7 years old
Sponsor/Scholarship/Other (Only Available with Permission)
Adult Small - 18.00 USD
Adult Medium - 18.00 USD
Adult Large - 18.00 USD
Adult XL - 18.00 USD
Adult 2XL - 20.00 USD
Adult 3XL - 20.00 USD
Adult 4XL - 20.00 USD
Youth Small - 18.00 USD
Youth Medium - 18.00 USD
Youth Large - 18.00 USD
$25, $50, $75, $100, $250, Other