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Rare Disease Day 2021


NBIA Disorders Association wins top prize in Rare Disease Day contest

The NBIA Disorders Association was a grand prize winner in the National Organization for Rare Disorders (NORD) 2021 Rare Disease Day contest.

The top prize was a $500 Amazon gift card and the opportunity to engage a NORD representative as a speaker at one of our upcoming virtual events this year.

Our video had over 15,000 views, 348 Facebook shares and 1052 likes and comments. NORD’s membership manager, Ashanthi Di Silva, said, “ We were honored to have so many thoughtful and inspiring submissions, and your video submission was definitely a highlight for our team and the rare disease community. We appreciate the time and effort you took to create something so visually engaging and meaningful. Thank you for all you’re doing to raise awareness and fight for rare diseases.”

Kudos to our social media director, Jenny Wildvank, for creating the video.


Go to Rare Disease Day 2020

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