• Scientific research 
  •  MDBR 2023
  • First Legacy Guardian Peggy Davis
  • Family photos
  • Now Accepting BPAN Research Grant Applications

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  • Support Team NBIA Disorders!

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  • Legacy Giving

    Thank you Legacy Guardian Peggy Davis.

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  • 2023 Family Conference Registration Now Closed

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In our drive to find a cure for NBIA,
we provide support to families, educate the public and accelerate research with collaborators from around the world.



​BPANready natural history
study funded until 2024


Educational Resources

​Posters, flyers and
other educational handouts


How Can You Get Involved?

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