• First Legacy Guardian Peggy Davis
  • Researchers in laboratories
  • Untitled design
  • Family photos
  • Legacy Giving

    Thank you Legacy Guardian Peggy Davis.

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  • NBIA Research

    Learn More about our Research Program.

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  •  Upcoming Funding Opportunities


    More Info
  • Living with NBIA during the COVID-19 Pandemic

    Family stories and Webinar recording

    More Info


In our drive to find a cure for NBIA,
we provide support to families, educate the public and accelerate research with collaborators from around the world.



​New $115,000 grant awarded
to study possible PKAN therapy


Educational Resources

​Posters, flyers and
other educational handouts


How Can You Get Involved?

Donate Become A Volunteer Connect With Us


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