30th Anniversary Celebration

NBIA Disorders Association 30th Anniversary Celebration

Join us in Indianapolis, Indiana, September 26–27, 2026, as we celebrate 30 years of the NBIA Disorders Association. This special weekend will bring together families, researchers, and supporters for community events, research updates and memorable celebrations.

The morning of Saturday, September 26, attendees will hear the latest research updates from scientists participating in the event. That evening, we’ll gather for the 30th Anniversary Celebration at the Biltwell Event Center, 950 S. White River Parkway West Drive, Indianapolis. We will honor those who have made the NBIA community possible while highlighting recent progress and future initiatives.

On Sunday, September 27, attendees are invited to enjoy a fun day at Newfields: Indianapolis Museum of Art, featuring beautiful outdoor green spaces, a group lunch and full access to the museum’s galleries and stunning gardens.

A room block is open at the Drury Plaza Hotel Carmel, 9625 North Meridian St Indianapolis, Indiana, at a special rate of $149 per night. The hotel offers complimentary hot breakfast, an evening “kickback” with drinks and snacks, and free parking. Book your room before Sunday, August 23, 2026 in order to secure our group rate. 

Drury Hotel Reservation 

Sponsorships make every part of this 30th Anniversary Celebration possible. A range of sponsor opportunities are available for both attendees and those who cannot join in person but still want to support the community. Tiered levels include Bright Horizons, which offers weekend registrations, celebration seating, drink tickets, a full-page program ad and prominent recognition throughout the event. Other levels, including Strong Roots, Blooming Progress and Seed of Hope, provide a mix of registrations, tickets, program recognition and logo placement.

Stand-alone sponsorships offer additional ways to participate. The Journey Sponsor helps provide safe, comfortable transportation for bus trips to the museum and the evening celebration. The Spotlight Sponsor covers a professional photographer to capture lasting memories. Supporters may also choose the Scientific Discovery Sponsor, which helps bring researchers to the weekend to share updates with families and take part in professional meetings.

Become a 30th Anniversary Sponsor 

Sponsorships make every part of this 30th Anniversary Celebration possible. Registration will open soon, and opportunities are limited. Those who join now will be part of a milestone event that celebrates the past 30 years while building hope for the future.

Partners

nbia alliance logo1NBIA Cure logoRare Disease Day PartnerTIRCON

Genetic Alliance logoNORDEURORDISGlobal Genes


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