Legacy Guardians

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Our First Legacy Guardian

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Peggy Davis with her son James and daughter Christy in the early 1980's.

The NBIA Disorders Association is excited to announce it has received its largest-ever legacy donation: a generous bequest from the late Peggy Davis in memory of her daughter, Christy Davis, who had BPAN.

Davis is our first Legacy Guardian, the name we have chosen for contributions designated in wills, retirement accounts and other financial sources. These donations are designed to ensure the sustainability of NBIA Disorders Association and its ability to continue to serve our expanding community. We are developing an investment policy to safeguard our financial future and serve our NBIA community for as long as we are needed.

We invite you to view our Legacy Guardian video to learn more about the Davis family, their generous gift and its transformative power. We are forever grateful to Peggy, Christy and her son, James, who speaks on behalf of his family in this video.

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