• Family Conference 2023
  • DecNewsletter
  • First Legacy Guardian Peggy Davis


OUR MISSION

In our drive to find a cure for NBIA,
we provide support to families, educate the public and accelerate research with collaborators from around the world.


 

News

NBIAcure prepares to submit for FDA
approval of CoA-Z compound

 

Educational Resources

​Posters, flyers and
other educational handouts

 

Families and Researchers Share, Learn and Support those dealing with ultra-rare NBIA Disorders

Deerfield, IL NBIA Disorders Association, a non-profit organization that provides support to families, educates the public and accelerates research with collaborators from around the world, today announced that it will hold its Ninth International Family Conference on June 1 to 4 in Deerfield, IL. With over 200 attendees from around the world coming together to support one another and learn about research to find cures and treatments, this is the largest gathering of families and researchers ever held for this group of ultra-rare diseases.

Read Press Release

 

Partners

nbia alliance logo1NBIA Cure logoRare Disease Day PartnerTIRCON

Genetic Alliance logoNORDEURORDISGlobal Genes


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