• Family Conference 2023
  • DecNewsletter
  • First Legacy Guardian Peggy Davis


OUR MISSION

In our drive to find a cure for NBIA,
we provide support to families, educate the public and accelerate research with collaborators from around the world.


 

28 Years

Supporting Families & Raising Awareness


 

$2.8 Million

Research Funded Since Inception


 

10 Countries

Represented by NBIA Alliance


 

News

 NBIAcure prepares to submit for FDA
approval of CoA-Z compound

 

Educational Resources

 ​Posters, flyers and
other educational handouts

 

Living with NBIA During the COVID-19 Pandemic

Information, Emergency Information Form, and Webinar Recording

MORE INFORMATION

Beacon of Hope Campaign

Please help with our Beacon of Hope campaign for family support.

GIVE

Partners

nbia alliance logo1NBIA Cure logoRare Disease Day PartnerTIRCON

Genetic Alliance logoNORDEURORDISGlobal Genes


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