• Family Conference 2023
  • DecNewsletter
  • First Legacy Guardian Peggy Davis


OUR MISSION

In our drive to find a cure for NBIA,
we provide support to families, educate the public and accelerate research with collaborators from around the world.


 

News

NBIAcure prepares to submit for FDA
approval of CoA-Z compound

 

Educational Resources

​Posters, flyers and
other educational handouts

 

NBIA Online Merchandise Store

Check out all of our new products!

GO SHOPPING

11th International Family Conference

Being held VIRTUALLY May 20-23, 2021

MORE INFO

Demystifying Research Grants:
Deciding Where Your Money Goes

Our webinar from 8/13/20 is now available to watch on-demand.

WATCH VIDEO

Partners

nbia alliance logo1NBIA Cure logoRare Disease Day PartnerTIRCON

Genetic Alliance logoNORDEURORDISGlobal Genes


Disclaimer    |     Privacy Policy    |     Financials    |     Contact Us

Give While You Shop!

Igive.com

G-CFB5FV5NLL