February 2020
"Our daughter, Dylan has BPAN, a variation of NBIA (Neuro-degeneration with Brain Iron Accumulation), which is an extremely rare degenerative and life-threatening disease with no current treatment or cure.
February 2020
"Georgia is our beautiful daughter who was recently diagnosed with Beta Propeller Protein Associated Neurodegeneration (BPAN). She is two years old and has been a huge blessing in our lives.
This is the story of Logan and his family... learning and living with a diagnosis of an NBIA disorder.
Watch one family's story of a diagnosis of NBIA - INAD to becoming involved in the NBIA community.
