April 2023
By Richard Tifone
"In 2007, when my son, Adam Tifone, was 16, doctors diagnosed him with atypical PKAN. The future looked daunting, and I didn’t imagine “thriving” would be part of it.
Sixteen years ago, Adam’s only symptoms were losing his balance, falling and various tics, which were attributed to a wrong diagnosis of Tourette Syndrome. Adam spoke clearly, and he liked to sing. He had a good voice, and he could run and ride a bike. Physically, he could do what most other kids his age could do.
