• March Newsletter 2025
  • Family Conference 2023
  • 9th Symposium 1
  • First Legacy Guardian Peggy Davis


OUR MISSION

In our drive to find a cure for Neurodegeneration with Brain Iron Accumulation (NBIA),
we provide support to families, educate the public and accelerate research with collaborators from around the world.


 

News

NBIAcure prepares to submit for FDA
approval of CoA-Z compound

 

Educational Resources

​Posters, flyers and
other educational handouts

 

NO PORTION OF ANY OF THESE FILES MAY BE COPIED, EDITED OR ALTERED IN ANY WAY WITHOUT THE EXPRESSED WRITTEN PERMISSION OF THE AUTHORS.

 

Keynote Speaker - Jannine Cody, PhD

 

← Click on the slide image to view the PowerPoint slides, or click on the button below to download the PowerPoint slides as a .PDF file:
Download .PDF File

 

 

NBIA Genes: What’s New? - Allison Gregory, MS, CGH

 

← Click on the slide image to view the PowerPoint slides, or click on the button below to download the PowerPoint slides as a .PDF file:
Download .PDF File

 

 

Best Practice Guidelines for PKAN – Penelope Hogarth, MD


 ← Click on the slide image or click on the button below to download the PowerPoint slides as a .PDF file:
Download .PDF File

 

 

 

How to Cope with the Psychological Effects of Disability – Don McGeary, PhD

 

← Click on the slide image to view the PowerPoint slides, or click on the button below to download the PowerPoint slides as a .PDF file:
Download .PDF File

 

 

Research Update – Suzanne Jackowski, PhD

 

← Click on the slide image to view the PowerPoint slides, or click on the button below to download the PowerPoint slides as a .PDF file:
Download .PDF File

 

 

Research Update – Paul Kotzbauer, MD, PhD


← Click on the slide image or click on the button below to download the PowerPoint slides as a .PDF file:
Download .PDF File

 

 

Research Update – Susan Hayflick, MD

 

← Click on the slide image to view the PowerPoint slides, or click on the button below to download the PowerPoint slides as a .PDF file:
Download .PDF File

 

 

 

Partners

nbia alliance logo1NBIA Cure logoRare Disease Day PartnerTIRCON

Genetic Alliance logoNORDEURORDISGlobal Genes


Disclaimer    |     Privacy Policy    |     Financials    |     Contact Us

Give While You Shop!

Igive.com

G-CFB5FV5NLL