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OUR MISSION

In our drive to find a cure for NBIA,
we provide support to families, educate the public and accelerate research with collaborators from around the world.


 

News

NBIAcure prepares to submit for FDA
approval of CoA-Z compound

 

Educational Resources

​Posters, flyers and
other educational handouts

 

NBIA Disorders Association is a registered 501(c) (3) whose sole purpose is to find a cure for NBIA, provide support to families, educate the public and accelerate research with collaborators from around the world.

As a registered nonprofit, the foundation is eligible for most employer matching gift and credit card rewards programs. Please consider these giving options by checking with your employer and credit card company to see if your gift can be matched or made with rewards points. 

Disclaimer: The information presented here is not offered as legal or tax advice. Please consult a professional tax adviser.

 

United Way

Does your workplace participate in a United Way campaign? Do you know you can designate your pledge to the NBIA Disorders Association through United Way’s Workplace Campaign? Most United Way chapters allow you to designate to any 501(c)(3) that meets basic criteria. On your enrollment form, simply list ‘NBIA Disorders Association’ and the contact information requested.

Are your colleagues participating in their employer’s United Way Workplace Campaign too? Encourage them to think about us when making their designation!

 

Matching Gifts

Corporate matching gifts are an easy way to increase the impact of your contribution to the NBIA Disorders Association. More than 15,000 U.S. corporations match gifts made by employees, officers, directors, and in some cases, spouses/partners and retired employees, officers, or directors. By taking advantage of a company's matching gift program, you can generate an additional gift that may automatically double or triple your contribution.

Check with your company's human resources department to find out about its matching gift policy.

Please direct all gifts and/or forms to:

NBIA Disorders Association
2082 Monaco Ct.
El Cajon, CA 92019-4235

Contact us at info@NBIAdisorders.org to discuss any gift opportunities or for other questions.

The NBIA Disorders Association is a 501(c)(3) nonprofit organization that relies on the generosity of people like you to provide much needed services to the NBIA disorders community. All donations are tax-deductible to the fullest extent allowed by law.

You may make your gift in honor of or in memory of an individual or family and that information is published in our newsletter.

Your gifts help to support families affected by Neurodegeneration with Brain Iron Accumulation, educate the public about this disease, and advance, monitor and support research through our research grants program. A key part of our mission is to find a cure for NBIA.

More than 90 percent of our contributions go directly to programs and services for patients and families. You can make a secure donation today through the NBIA Disorders Association’s website via PayPal or by mail.

Donate Securely Online

 

Donate by Mail

To donate by mail please print the NBIA Disorders Association Contribution Form and include it with your contribution. Make checks payable to NBIA Disorders Association and mail to:

NBIA Disorders Association
2082 Monaco Ct.
El Cajon, CA 92019-4235

Contribution Form

 

For more information on giving to the NBIA Disorders Association, please contact Patty Wood at pwood@NBIAdisorders.org.

 

 

Partners

nbia alliance logo1NBIA Cure logoRare Disease Day PartnerTIRCON

Genetic Alliance logoNORDEURORDISGlobal Genes


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