FirstGiving...

The NBIA Disorders Association is a small, collaborative organization, and our impact multiplies with each new team member who shares his or her story and hosts a fundraiser.

Our staff is dedicated to providing support and resources to individuals and loved ones affected by NBIA.

Fundraising is crucial to the work we do. We are entirely funded by our families, friends, and sponsors, including private and corporate foundations. Our small team ensures that every donation, no matter the size, goes the longest way possible. Otherwise, we could not fulfill our mission to provide support to families, educate the public and accelerate research with collaborators from around the world.

You can support us by raising funds for the NBIA Disorders Association. There are many fun and creative ways for you to raise money. Possibilities include:

• Sharing your story and asking people to give a donation
• Asking for donations instead of birthday gifts
• Participating in one of the larger events in which NBIA Disorders Association is involved
• Organizing a run or walk
• Hosting a casual dinner party for friends, neighbors and colleagues
• Holding a golf tournament
• Organizing a bake sale, dessert party or pancake breakfast
• Hosting a house party where a portion of the sales of a product are donated
• Hosting an awareness event at a local fair/school/church/synagogue
• Hosting a tournament at your local school, roller-skating rink or bowling alley
• Organizing a dinner/dance with a silent auction

We have several campaign pages you can tell people about via email or your social media activities. People can give online, or mail a check. Or you can create your own fundraising page using our Salsa Engage site.

Salsa Engage is a secure, online service and a terrific way to promote your cause and raise support for it at the same time. With Salsa Engage's resources and tools, you can easily create your own personal fundraising page that allows you to:

• Set a goal and track your progress
• Add photos and captions to personalize your page
• Tell your story about why you’re raising funds
• Write a thank you note that is automatically sent to supporters after a gift is received

The donations are sent directly to NBIA Disorders Association.
Choose from one of our current Campaigns or let us assist you in making a new one.

Download our Toolkit for more ideas.

Need some help getting started? NBIA Disorders Association is here to help!

For assistance contact us at info@NBIAdisorders.org.

Consider Your Future—and Ours

Since 1996, the NBIA Disorders Association has been a beacon of hope and support for the parent whose child was just diagnosed with NBIA. We want to continue being that lifeline — today and tomorrow for NBIA individuals and families, whether we are providing them with support, funding the most relevant research or educating the public about these devastating disorders.

We need you to help ensure our future by making us a part of your future.

Make a plan now to give back to your NBIA community to sustain our work for future generations. Planned charitable giving is easy and mutually beneficial. You have many options, but the simplest is including a gift to us in your will. Or you could make us the beneficiary of a life insurance policy, retirement plan or other asset —savings, stocks or property. Whatever you decide, your planned gift will make us stronger in the years ahead. You may also be eligible for a tax benefit.

We are dedicated to this work for the long haul, until all NBIA disorders are cured. Please take a few minutes today to ensure that we are here for families when they need us the most.

Your Guide to the Ways to Give

There are a number of ways you can give to NBIA Disorders Association and each can provide different tax advantages. We hope you will consider the following gift options:

OUTRIGHT GIFTS AND MULTI-YEAR PLEDGES                            

• Single Donations (cash or credit card in any amount)
• Monthly Donations (by credit card in various amounts)
• Appreciated Securities (of any value)

PLANNED GIFTS

• Bequests and Endowments
• Retirement and Life Insurance Plans
• Real Estate and Personal Property

GIFTS THAT PAY YOU INCOME

• Charitable Gift Annuities
• Charitable Trusts

TRIBUTES AND MEMORIAL GIFTS

• Arrange for a gift to be made as a tribute or in memory of a loved one

GIFTS FROM YOUR WILL OR TRUST

HOW IT WORKS:

• Include a bequest to NBIA Disorders Association in your will or trust.
• Make your bequest unrestricted or direct it to a specific purpose.
• Indicate a specific amount, or a percentage of the balance remaining in your estate or trust.

BENEFITS:

• Your assets remain in your control during your lifetime.
• You can modify your gift to address changing circumstances.
• You can direct your gift to a particular purpose (be sure to check with us to make sure your gift can be used as intended).
• Under current tax law, there is no upper limit on the estate tax deduction for your charitable bequests.

Disclaimer: The information presented here is not offered as legal or tax advice. Please consult a professional tax adviser.

GIFTS OF LIFE INSURANCE

HOW IT WORKS:

• You transfer ownership of a paid-up life insurance policy to NBIA Disorders Association.
• The Association elects to cash in the policy now or hold it.

BENEFITS:

• Make a gift using an asset that you and your family no longer need.
• Receive an income tax deduction.
• In some cases, you can use the cash value in your policy to fund a life-income gift.

Disclaimer: The information presented here is not offered as legal or tax advice. Please consult a professional tax adviser. 

GIFTS OF STOCK AND APPRECIATED SECURITIES

HOW IT WORKS:

• You transfer appreciated stocks, bonds, or mutual fund shares you have owned for more than one year to NBIA Disorders Association. 
• The Association sells your securities and uses the proceeds for its programs.
• See donating stock for more information on this process.

BENEFITS:

• You receive an immediate income tax deduction for the fair market value of the securities on the date of transfer, no matter what you originally paid for them.
• Your capital gains tax can be abated. 
• Giving appreciated stock could be more beneficial than giving cash.

 Disclaimer: The information presented here is not offered as legal or tax advice. Please consult a professional tax adviser. 

GIFTS OF PERSONAL PROPERTY

HOW IT WORKS:

• You transfer a valuable painting, antiques, or other personal property to NBIA Disorders Association
• The Association may hold and display the property or use it in the furtherance of its mission.
• The Association may sell the property at some point in the future and use the proceeds for its mission.

BENEFITS:

• You receive an immediate tax deduction for the appraised value of your gift and pay no capital gains tax, so long as the gift can be used by the Association to carry out its mission.
• In certain cases, you can use personal property to fund a life-income gift that provides you and/or other loved ones with an income now and benefits the Association in the future.
• Without using cash, you can make a gift that is immediately beneficial to NBIA Disorders Association.

 Disclaimer: The information presented here is not offered as legal or tax advice. Please consult a professional tax adviser. 

GIFTS OF REAL ESTATE

HOW IT WORKS:

• You deed your home; your vacation home, undeveloped property, or a commercial building to NBIA Disorders Association.
• The Association may use the property for its own purposes or will sell it and use the proceeds.

BENEFITS:

• You receive an income tax deduction for the fair market value of the real estate. 
• You pay no capital gains tax on the transfer.
• You can direct the proceeds from your gift to a specific program at the Foundation.

 Disclaimer: The information presented here is not offered as legal or tax advice. Please consult a professional tax adviser. 

CHARITABLE GIFT ANNUITY - A GIFT THAT PAYS YOU INCOME

HOW IT WORKS:

• You transfer cash or securities to a Community Foundation in your area with a signed annuity contract and name NBIA Disorders Association as (or one of ) the beneficiary(s). 
• The Foundation pays you, yourself and a spouse, or any two beneficiaries you name, a fixed income for life.
• Beneficiaries are recommended to be at least 55 years of age at the time of the gift.
• The remaining balance will be applied by the NBIA Disorders Association to the purpose you stipulated, when you signed the annuity contract.

BENEFITS:

• Receive dependable, fixed income for life in return for your gift.
• In many cases, receive payments at a rate higher than the interest you are currently receiving from stocks. CDs, or savings accounts.
• Receive an immediate income tax deduction for a portion of your gift.
• A portion of your annuity payment will be tax-free.

 Disclaimer: The information presented here is not offered as legal or tax advice. Please consult a professional tax adviser. 

CHARITABLE TRUSTS - THIS GIFT WILL PAY YOU INCOME

HOW IT WORKS:

• You transfer cash, securities, or other appreciated property into a trust (contact your professional advisor). Suggested minimum for this type of gift is $100,000. 
• The trust makes fixed annual payments to you or to beneficiaries you name.
• When the trust terminates, the remainder passes to NBIA Disorders Association to be used as you have directed.

BENEFITS:

• Receive income for life or a term of years in return for your gift.
• Receive an immediate income tax deduction for a portion of your contribution.
• Pay no upfront capital gains tax on appreciated assets you donate.
• Your trust can meet personal or family needs that are tied to a specific time frame, such as tuition payments. 

 Disclaimer: The information presented here is not offered as legal or tax advice. Please consult a professional tax adviser.