Dr. Susan Hayflick of Oregon Health & Science University has been awarded $45,000 by our organization for her grant titled, “Examining the role of ischemia in the neurodegenerative disease PKAN.” The one year grant period began on December 15, 2014.
The OHSU team has a new website at www.NBIAcure.org They created the site to serve as a valuable resource that is easy to use and understand. It is part of a new project called NBIAready. It has three components: long-term studies of individuals with NBIA, development of a powerful database and the development of this comprehensive website to aid families, clinicians and researchers.
Our Eighth International NBIA Disorders Association Family Conference will be held May 28-31, 2015.
Site of the conference is the Embassy Suites Minneapolis North in Brooklyn Center, Minn. The hotel is approximately 7 miles from downtown Minneapolis. Room rates are $114 for up to 2 people and $10 for each additional person.
