The NBIA Disorders Association board chose three projects among 19 applications to receive grants totaling $157,725 this year, enabling researchers to study three different forms of NBIA.
The grants will further research into Pantothenate Kinase-Associated Neurodegeneration, or PKAN, Mitochondrial-membrane Protein-Associated Neurodegeneration, known as MPAN, and Beta-propeller Protein-Associated Neurodegeneration, or BPAN.
Drew is a 20 year old with NBIA disorder. He is passionate about wanting people to know about rare diseases. Watch and share this inspiring video of his story.
Researchers interested in applying for a grant from NBIA Disorders Association have until April 1, 2015 to submit their application.
Grants will be for one year and up to $45,000 with funding to begin June 30, 2015. Proposals to develop models will be considered for multi-year funding with budget justification.
Please see our grant application for more details:
Grants Program Information
