NBIA News Archive

2015 Research Grant Cycle Open for Applications

Research

Researchers interested in applying for a grant from NBIA Disorders Association have until April 1, 2015 to submit their application.

Grants will be for one year and up to $45,000 with funding to begin June 30, 2015. Proposals to develop models will be considered for multi-year funding with budget justification.

Please see our grant application for more details:
Grants Program Information

OHSU Awarded Research Grant for 2014 PKAN Grant Round

Dr. Susan Hayflick

Dr. Susan Hayflick of Oregon Health & Science University has been awarded $45,000 by our organization for her grant titled, “Examining the role of ischemia in the neurodegenerative disease PKAN.” The one year grant period began on December 15, 2014.

NBIAready Project Launches Website

OHSU group

The OHSU team has a new website at www.NBIAcure.org They created the site to serve as a valuable resource that is easy to use and understand.  It is part of a new project called NBIAready. It has three components: long-term studies of individuals with NBIA, development of a powerful database and the development of this comprehensive website to aid families, clinicians and researchers.

Eighth International Family Conference May 28-31, 2015

Eighth International Family Conference May 28-31, 2015

Our Eighth International NBIA Disorders Association Family Conference will be held May 28-31, 2015.

Site of the conference is the Embassy Suites Minneapolis North in Brooklyn Center, Minn. The hotel is approximately 7 miles from downtown Minneapolis. Room rates are $114 for up to 2 people and $10 for each additional person.

Board awards 3 research grants in March totaling $239,680 to study NBIA

Research Grant

The NBIA Disorders Association board is awarding $239,680 to three research projects that received top scores from a pool of 22 grant applications.

Partners

nbia alliance logo1NBIA Cure logoRare Disease Day PartnerTIRCON

Genetic Alliance logoNORDEURORDISGlobal Genes


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