NBIA News Archive

NBIA research advances with grant awards

Dr. Penny Hogarth

NBIA researcher Dr. Penny Hogarth has been awarded startup funds to pursue a new area of NBIA study and to develop tests for gauging severity of the illness.

Focus on Issues Radio

Patricia Wood

President Patricia Wood was the guest speaker on a “Focus on Issues” segment at KECR 910 AM radio station in El Cajon, CA in December.

SCOPE Summit

SCOPE Summit

Miami, February 4-6, 2014

President Patricia Wood will participate in a panel discussion on "Partnership with Patient Communities to Get from Data to Clinic” at the Cambridge Healthtech Institute's SCOPE Summit in Miami.

New Research Grant cycle open for applications

Research

Researchers interested in applying for a grant from NBIA Disorders Association have until October 31 to submit a letter of intent.

2013 Family Conference

The Alamo

Record number attend San Antonio gathering and enjoy learning and sightseeing together

Our Seventh International Family Conference in San Antonio was our largest yet, with 120 participants from the U.S., Canada, Australia, Norway, England, India and Japan. That number included 27 NBIA individuals, also a record number.

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Partners

nbia alliance logo1NBIA Cure logoRare Disease Day PartnerTIRCON

Genetic Alliance logoNORDEURORDISGlobal Genes


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