• Family Conference 2023
  • DecNewsletter
  • First Legacy Guardian Peggy Davis


OUR MISSION

In our drive to find a cure for NBIA,
we provide support to families, educate the public and accelerate research with collaborators from around the world.


 

News

NBIAcure prepares to submit for FDA
approval of CoA-Z compound

 

Educational Resources

​Posters, flyers and
other educational handouts

 

June 1-4
Deerfield, IL

Our ninth family conference comes to Chicago in June!

The NBIA Disorders Association’s Ninth International Family Conference is set for June 1 to 4 in Deerfield, IL, just 30 minutes north of Chicago and its many attractions: Millennium Park, the famed Field Museum of Natural History and the exceptional Art Institute of Chicago.

We have outgrown the Embassy Suites, which lacks space needed for larger groups, but we were fortunate to find the Hyatt Deerfield. It has suites and a complimentary full breakfast, making it similar to what we’ve enjoyed in the past. It also offers a hotel shuttle for guests traveling within a 5-mile radius, including a train stop heading to downtown Chicago and other destinations.

We expect this to be our largest conference to date and one you won’t want to miss!  Click the link below for more conference information as it becomes available, hotel room reservations, scholarship information, sponsorship opportunities, and more.

Conference Home Page

Partners

nbia alliance logo1NBIA Cure logoRare Disease Day PartnerTIRCON

Genetic Alliance logoNORDEURORDISGlobal Genes


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