• Family Conference 2023
  • DecNewsletter
  • First Legacy Guardian Peggy Davis


OUR MISSION

In our drive to find a cure for NBIA,
we provide support to families, educate the public and accelerate research with collaborators from around the world.


 

News

NBIAcure prepares to submit for FDA
approval of CoA-Z compound

 

Educational Resources

​Posters, flyers and
other educational handouts

 

We are all used to planning every day whether it’s to take care of our children, our families, our homes or issues at work. We make plans so that when we are not at home or at work, someone responsible will carry out our instructions.

The same concept applies to estate planning. What’s that?  Fundamentally, estate planning is good stewardship of your financial and personal resources so that you have a plan in place to care for your family. It may involve a will or revocable trust, appropriate insurance, planning with retirement assets, or some other kind of financial plan.

Partners

nbia alliance logo1NBIA Cure logoRare Disease Day PartnerTIRCON

Genetic Alliance logoNORDEURORDISGlobal Genes


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