Register now for our first-ever virtual family conference

2021 conference logoApril 2021

Time is running out to register for the 11th International NBIA Disorders Association Family Conference to be held online only from May 20 to 23. The deadline is May 14.

We hope you will join us for our first-ever virtual conference as we mark 25 years of service to the NBIA community. Sessions will be held over the four days with NBIA individuals, families, caregivers, researchers, clinicians and biotech leaders from around the world.

Our agenda includes inspirational speakers, research updates from our NBIA scientists, disease-specific clinical sessions, information on advocating for your child and building resiliency, as well as other topics of interest to all NBIA families.

In addition to learning from our speakers, we will be offering many opportunities for NBIA individuals and families to engage and share information with each other. Time has been built in for relaxation, with meditation and yoga, and a dance party hosted by our very own DJ Mike on Saturday in honor of our organization’s founding 25 years ago in 1996.

We are happy to announce and publicly thank our sponsors who are helping to make this conference possible. Our premier sponsor is INADcure Foundation whose mission is to help find a cure for PLAN, one of the more common NBIA disorders. Our other sponsors are industry partners CoA Therapeutics Inc., Travere Therapeutics Inc., Chiesi USA Inc. and in-kind sponsor 4Gen Digital who created our online conference merchandise shop.

We can’t wait to gather with each of you — old friends and new members of our worldwide NBIA community.


INADcure logo

 CoA Therapeutics logo Travere Therapeutics logo

Chiesi USA logo4Gen Digital logo