Board Welcomes New President

Board Welcomes New President

December 2023

The Board of Trustees is pleased to welcome Amber Denton as the President of the NBIA Disorders Association. Denton, a valued member of the Board since 2019, officially assumed her role on October 1, 2023, succeeding the esteemed outgoing president and NBIA Disorders Association founder, Patricia Wood.

 Amber Denton

 Amber Denton, the new president of the NBIA Disorders Association.

Denton brings a wealth of experience, energy and empathy to our organization. Denton’s commitment to our cause is deeply rooted in her personal journey. Following her daughter Sydney's diagnosis with BPAN in 2017, Denton immediately dedicated herself to advocacy and fundraising. Through her initiative, Sydney’s Song, a Houston-based NBIA advocacy group, she and her community rallied, helping to raise over $100,000 for NBIA Disorders Association. Denton has also played an integral part in uniting NBIA-affected families in Houston, collectively known as the Houston BPAN Tribe, fostering local fundraising and advocacy efforts showcased at the recent 2023 Family Conference.

Her involvement with NBIA Disorders Association began in 2017, initially contributing to the Development Committee and later assuming a Board position as Development Committee chair in 2019. Displaying exceptional leadership, Denton served as Vice President of the Board of Trustees from April 2022 to September 2023. Her active participation as a presenter at NBIA Disorders Association Family Conferences, focusing on fundraising and raising NBIA awareness, and most recently, as Co-Chair of our 2023 Conference, underscores her dedication to our mission.

Before assuming her presidency at NBIA Disorders Association, Denton dedicated 16 years to education, serving as a Kindergarten and 1st-grade teacher and as a Primary Instructional Specialist. Denton lives in Houston along with her husband David, son Brady, and daughter Sydney.

Denton states, “I am truly grateful for the trust and confidence placed in me, and I am ready to embrace the challenges and opportunities that lie ahead. Under the guidance of Patty Wood, our organization has already made such remarkable achievements. I promise to continue the legacy and, as always, make our community proud of the work we do at NBIA Disorders Association. It is a great honor to lead us into the future.”

The Board is excited to partner with Denton as our organization moves into its next chapter.

Congratulations, Amber.

Partners

nbia alliance logo1NBIA Cure logoRare Disease Day PartnerTIRCON

Genetic Alliance logoNORDEURORDISGlobal Genes


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