2026 Newsletters

2026 March Newsletter

In This Issue:

  • Rare Disease Day Recap
  • New Board Member
  • OHSU PKAN Research Update
  • 30th Anniversary Sponsors Needed
  • 2027 Family Conference Save the Date
  • 2026 Million Dollar Bike Ride
  • Director of Development and Community Engagement
  • Donor Recognition 
  • NBIA Angels
  • President Message

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Partners

nbia alliance logo1NBIA Cure logoRare Disease Day PartnerTIRCON

Genetic Alliance logoNORDEURORDISGlobal Genes


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