2025 December Newsletter
In This Issue:
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30th Anniversary Celebration
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UTHealth Center of Excellence
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NORD Centers of Excellence
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Dr. Susan Hayflick Award
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Scientific and Medical Advisory Board Update
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BPAN Research Roadmap
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Poland Clinical Trial
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Stanford BPAN Research
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FAHN Natural History Study
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CHOP BPAN Gene Therapy
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Season of Gratitude
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Giving Tuesday
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Donor Recognition
-
NBIA Angels
-
President Message
