2023 Newsletters

December 2023 Newsletter

2023 December Newsletter

In This Issue:

  • Board Welcomes New President
  • BPAN Grant Award
  • Officer & Board Update
  • GivingTuesday 2023
  • "Ultimate Volunteers"
  • PLAN Guidelines
  • INAD Gene Therapy
  • Dr. Hayflick Award
  • BPAN Grant Collaboration
  • Holiday Shop
  • Poland Meetings
  • INAD Fundraiser
  • Rare Disease Summits
  • Partners in Hope
  • Donors
  • NBIA Angels
  • Message From the President

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September 2023 Newsletter

2023 September Newsletter

In This Issue:

  • Passing the Torch
  • Family Conference Wrap Up
  • 2023 MDBR Grant Call
  • Lockhart Research Update
  • Center of Excellence Award
  • Caring for Caregivers
  • Conference Keynote
  • G-Tube Feeding Info
  • Conference BPAN Research
  • Rare Disease Therapy
  • Movement Disorders
  • NBIA Research Overview
  • T.R.Y. Day
  • Partners in Hope
  • Donors
  • Message From the President
  • NBIA Angels

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April 2023 Newsletter

2023 April Newsletter

In This Issue:

  • BPAN Grant Call
  • BPAN Grant Research Award
  • 2023 MDBR Match
  • SMAB News
  • Family Conference News
  • Thriving with PKAN
  • Fundraising News
  • Rare Disease Day
  • Partners in Hope
  • Donors
  • NBIA Angels

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