2021 Newsletters
2021 December Newsletter
In This Issue:
- 25th Anniversary Celebration
- Rare Champion of Hope Award
- PKAN Grant Awarded
- BPAN Grant Update
- Advocacy Webinar
- MPAN Funding Update
- Board News
- GivingTuesday Update
- Fundraising News
- Partners In Hope
- Donors
- NBIA Angels
- Message from the President
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2021 September Newsletter
In This Issue:
- Family Conference Sets Attendance Record
- BPAN MDBR Grant Call Underway
- 25th Anniversary Celebration
- CoA Therapeutics Clinical Trial Update
- BPAN Grant Update
- RARE-X BPAN Platform Open
- BPAN Consensus Guideline
- BPAN Mouse Model Available
- Fundraising News
- Partners In Hope
- Donors
- NBIA Angels
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2021 April Newsletter
In This Issue:
- Virtual Family Conference
- MDBR Fundraising Match Underway
- SMAB Welcomes Two New Members
- MPAN Research Grant Awarded
- BOAB Research Grant Awarded
- Winning Rare Disease Day Video
- Planning For The Future
- Fundrasing News
- NBIA Merchandise Shop
- Partners In Hope
- Donors
- NBIA Angels
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