English

2020 Newsletters

2020 October Newsletter

In this issue: 

  • Church supports member with NBIA
  • Message from Board Chair
  • Mauthe Research Update
  • Ketteler Research Update
  • MPAN Grant Award
  • Research Funding Webinar
  • Zhang Research Update
  • Seo Research Update
  • Fundraising News
  • Partners in Hope
  • Donors
  • NBIA Angel

READ NEWSLETTER

2020 June Newsletter

17 pages of the latest news and informative articles including “Message from the President,” “Team NBIA Disorders reaches $30,000 goal for MDBR,” “NBIA Disorders Association awards $45,000 for FAHN research in March,” “Board of Trustees welcomes 2 members filling the shoes of 2 departing trustees,” “2019 Million Dollar Bike Ride supporting BPAN stem cell project,” “Living with NBIA during a pandemic,” “NBIA families share their stories of separation, lost rituals during pandemic,” “Goal met thanks to generous donors,” “Fundraisers since November bring in more than $44,000.”

Read Newsletter

Donate Now

Sign-up for our Newsletter