"Our daughter Barbara Claire started slowing down at the age of 29. 9 months later she gave birth to Lawrence, who is now 4 years old. At first, she was still driving and could take him to toddler groups and the park. Over the last 2 years she has deteriorated so much she can no longer play with him; her hands are clawed inwards. She can't walk unaided, feed or dress herself and is struggling to eat and now her speech is affected. We are desperate for support or help to improve her quality of life as my husband and I also both work full time as well as caring full time for Barbara and Lawrence."