From Discovery to Cure - NBIA Disorders Association

NBIA Research

Learn More about our Research Program.

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Rare Champions of Hope

Dr. Susan Hayflick wins award.

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Upcoming Funding Opportunities

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Living with NBIA during the COVID-19 Pandemic

Family stories and Webinar recording

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OUR MISSION

In our drive to find a cure for NBIA,
we provide support to families, educate the public and accelerate research with collaborators from around the world.

25 Years

Supporting Families & Raising Awareness

$2.4 Million

Research Funded Since Inception

10 Countries

Represented by NBIA Alliance

Newly Diagnosed

News

New $115,000 grant awarded
to study possible PKAN therapy

Educational Resources

Posters, flyers and
other educational handouts

How Can You Get Involved?

Donate Become A Volunteer Connect With Us

Give While You Shop!