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Contracts Awarded

  • March 2013 original projected start date – revised to September, 2014: OregonHealth & ScienceUniversity, PortlandOR. “Gene Therapy Mouse Phenotyping.” $119,993. 18 month project started with the delivery of mice from OZgene Pty Ltd. in September, 2014.

  • March 2012: OZgene Pty Ltd, BentleyWA, Australia. “Gene Targeted heterozygous mice.” $52,415. Project completed in September, 2014 with the delivery of mice to OHSU in September, 2014.

  • January 2012: OregonHealth & ScienceUniversity, PortlandOR. “Best Practices in the Care and management of People with NBIA.” $16,116.67. Total cost $48,350.01. Partners in this project were AISNAF, the Italian NBIA organization and Hoffnungsbaum e.V., the German NBIA organization. Project underway with an estimated completion of winter, 2014.

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Best Practices

NBIA experts developing "best practices" for care, management of NBIA patients
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