March 2013: Oregon Health & Science University, Portland OR. “Gene Therapy Mouse Phenotyping.” $119,993. Project to start with the delivery of mice from OZgene Pty Ltd. sometime in 2013.
April 2012: Oregon Health & Science University, Portland OR. “Gene Therapy to Model PKAN in Mice.” $22,800. (Murine Model) Project cancelled due to new research information.
March 2012: OZgene Pty Ltd, Bentley WA, Australia. “Gene Targeted heterozygous mice.” $50,575. Project underway; waiting for mice with the needed genetic changes for phenotyping.
January 2012: Oregon Health & Science University, Portland OR. “Best Practices in the Care and management of People with NBIA.” $16,116.67. Total cost $48,350.01. Partners in this project were AISNAF, the Italian NBIA organization and Hoffnungsbaum e.V., the German NBIA organization. Project underway with an estimated completion of winter, 2013.
NBIA experts developing "best practices" for care, management of NBIA patients Read Article