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Fun on the Train

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Connect with NBIA Disorders Association
NBIA Families and Friends
  1. The NBIA Disorders Association is the only organization in the United States providing specific support, information and services for NBIA disorders.


    Who Connects with the organization?

    • • An individual who is diagnosed with one of the NBIA disorders.
    • • A parent whose child is diagnosed with one of the NBIA disorders.
    • • A grandmother whose concern extends to the well-being of her child, not just her grandchild.
    • • A family friend who wants to learn more about NBIA and how he/she can help.
    • • A sibling who wants to know what to expect in the future.
    • • Anyone who cares about someone with NBIA.

    We invite you to be a part of our NBIA community... Tell us about you...

  2. First Name*
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  3. Last Name*
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  4. Street Address*
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  5. Address Line 2
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  6. City*
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  7. State*
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  8. Postal Code*
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  9. Country*
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  10. Telephone*
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  11. Email*
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  12. Have you contacted the NBIA Disorders Association before?*
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  13.  

  14. Tell us about the person with NBIA in your life

  15. Individual's First Name*
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  16. Individual's Last Name*
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  17. Gender*
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  18. Age*
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  19. Date of Birth
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  20. Your relationship to this person*
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  21. Has a diagnosis of NBIA been confirmed?
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  22. If yes, what form of NBIA do they have?














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  24. Other Information

  25. I wish to help raise awareness about NBIA in my community and would like information on how to accomplish this
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  26. I wish to volunteer my services in some capacity to the organization
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  27. I wish to become involved in fundraising for the organization
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  28. I wish to receive the 3 times yearly organization newsletter via email
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  29. If in U.S. you may indicate you prefer to receive a hard copy of the newsletter
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  30. If you reside outside of the United States and there is a NBIA organization in your country, would you like us to also forward your information to that organization?
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  31. Additional Comments
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  32. *For security reasons, please enter the characters:*
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