"Our daughter, Dylan has BPAN, a variation of NBIA (Neuro-degeneration with Brain Iron Accumulation), which is an extremely rare degenerative and life-threatening disease with no current treatment or cure. Dylan is very impacted by this disease, and continues to suffer from seizures, severe developmental delays, intellectual disability, and significant difficulty communicating. There are researchers around the globe working to understand this horrible disease with the hope of identifying possible treatment and finding a cure. They need our help! By donating to the NBIA Disorder Association for Dylan, you can help raise the money we need to make critical progress. Remember, RESEARCH = HOPE!"