Every year caring volunteers just like you donate their time to the NBIA Disorders Association to help raise funds to support research in the hopes of finding a cure and to assist children and adults in the U.S. who are impacted by NBIA.
Now you can do your part to help people with NBIA, by participating in our new internet campaign, Together for Tomorrow: An NBIA Community Campaign.
Together for Tomorrow: An NBIA Community Campaign launches on September 1st and runs through Rare Disease Day, February 28, 2014. This six-month campaign’s primary focus is to raise awareness and funds that will go to support our research grants program and also to our support services for children and families impact by NBIA.
Anyone can sign up to participate at any time during the six-month campaign. It's very simple and will only take about 30 minutes of your time. All you have to do is:
The NBIA Disorders Association can only continue to fight this group of rare diseases if we all work together. Please take a few moments right now to create your online personal fundraising page and then send a quick email to friends, family and work colleagues. Please know that the small amount of time it takes you to send an email to your friends and family members can make a big impact.
Thank you for your time and commitment to making our NBIA Community Campaign a success!