Site Index >>> All links are current and were updated as of February 5, 2003. Updates after February 5, 2003 are indicated next to each link listed below.
	Fourth International NBIA Disorders Association Family Conference held in Cincinnati, Ohio, May 4th - May 6th, 2007. "Click" on this link for conference pictures.
	About Us Officers/Board of Trustees [updated 1/28/08] Financials / Tax Returns [updated 3/17/08] » 2007 Financial Statement [updated 3/26/08] » 2007 Tax Return [updated 3/17/08] » 2006 Financial Statement [updated 3/17/08] » 2005 Financial Report [updated 12/9/05] » Pie Charts 2003-2007 Scientific & Medical Advisory Board [updated 10/23/07] Genetic Counselor [updated 11/3/03] Goals of NBIA Disorders Association How NBIA Disorders Association Began Why we changed our name to NBIA Disorders Association The First Decade [updated 5/1/06]
	NBIA FAQ What is NBIA? [updated 12/04/07] » German translation Diagnosing Patients An Interview with Dr. Susan Hayflick » German translation [updated 12/5/07] GeneReviews - PKAN [updated 10/1/03] INAD Genetics Testing Information » INAD Patient brochure [updated 2/6/08] » INAD Primary care brochure [updated 2/6/08] » INAD Genetics professional brochure [updated 2/6/08]
	Family Support Message from President » December, 2007 - [updated 1/27/08] » August, 2006 [updated 9/18/06] » April, 2006 [updated 5/1/06] » December, 2005 [updated 3/6/06] » April, 2005 » August, 2003 [updated 8/16/05] Networking Program SibsConnect [updated 4/3/07] NBIA Families (pictures) » Page One [updated 1/19/07] » Page Two » Page Three [updated 3/19/04] » Page Four [updated 3/17/04] Family Stories [updated 4/3/07] Guest Book [updated 9/29/07] B5 Experiences [updated 7/13/07] Ask the Doctor [updated 8/16/05] 4th Int. NBIA Family Conference » Conference overview [updated 9/14/07] » DBS session [updated 9/14/07] » Pain Management session [updated 9/14/07] » Research Update session [updated 9/14/07] » Stem cells session [updated 9/14/07] » BioBank at conference [updated 9/14/07] Photo Gallery » General Conference Pictures [updated 7/11/07] » NBIA Families [updated 7/11/07] » Sessions [updated 7/11/07] » Picnic [updated 7/11/07] 3rd Int. NBIA Family Conference [updated 12/4/05] » Conference Wrap up Article [updated 12/9/05] » NBIA Quotes [updated 12/9/05] Photo Gallery » General Conference pictures [updated 8/17/05] » NBIA families [updated 8/16/05] » Care room [updated 8/16/05] » Saturday Night Dessert Social [updated 8/15/05] Power Point Presentations [updated 8/15/05] » DBS/Baclofen Pump/Botox - May, 2005 Dr. Penny Hogarth [updated 8/15/05] » OHSU Research Update - May, 2005 Dr. Susan Hayflic [updated 8/15/05] » PKAN study - Allison Gregory, genetic counselor, OHSU [updated 8/15/05] » Understanding genes - Allison Gregory, genetic counselor, OHSU [updated 8/15/05] 2nd Int. HSSA Family Conference » Photo Gallery 1st Int. HSSA Family Conference » Photo Gallery First NBIA Family Conference in Germany - 2004 [updated 12/19/04] Third NBIA Family Conference in Germany - 2006 [updated 4/3/07] Helpful Links: » Government » Assistive Technology » Pharmaceutical » Non-Profit Organizations [updated 4/21/03] » Parenting [updated 6/13/06] » Wish Organizations » Travel » General [updated 2/26/08] Family Surveys [updated 4/21/03] Memorials [updated 1/28/08]
	Listserv NBIAdisorders Listserv [updated 7/17/04]
	Research What's new in NBIA Research [updated 1/28/08] Second Scientific Workshop - May, 2005 [updated 8/16/05] » Second Scientific Workshop Article [updated 12/9/05] HSS Gene found - July 23, 2001 » Another NBIA gene found - 2006 [updated 1/28/08] First Scientific Workshop on HSS Research Registry [updated 8/16/05] INAD Gene Found [updated 1/28/08]
	Grant Info 2008 Grant Application [updated 3/17/08]
	Literature Medical Journal Articles [updated 1/25/08] Newsletter Articles: » NBIA: Who’s Under Our Umbrella? [updated 1/28/08] » New study on deep brain stimulation shows improvement in all 6 patients - August 2005  » A date with Sen. Ted Kennedy’s office - April 2004 » Tackling NBIA pain with morphine:    Difficult issue requires much thought - April 2004  » Manage Your Own Medical Journey - April 2004  » Botox Injections - December 2002  » Baclofen Pump Warning - April 2002  » Baclofen Pump Caution - December 2003  » Chelation - March 2000  » Retinitis Pigmentosa - July 1999 Conference Presentations:  » DBS/Baclofen Pump/Botox - May 2002  » NBIA Genetics - May 2002 News [updated 1/28/04]
	How You Can Help Volunteers [updated 1/28/08] » Volunteer form Donations [updated 1/15/08] NBIA Cookbooks / T-shirts / Polo shirts / Pins [updated 7/7/07] NBIA Fundraising [updated 1/28/08] » April 2008 - Upcoming Events [updated 4/1/08] » Where Do The Donations Go? [updated 4/3/07] Easy, Free, Ways to Contribute » iGive.Com - online shopping program; 654 big name stores participating » GoodSearch.Com - choosing this as your search engine contributes to our organization every time you search. [updated 4/7/06]
	Merchandise NBIA Cookbooks / T-shirts / Polo shirts / Pins [updated 7/7/07]
	Site Search Search the NBIA Disorders Association Web Site
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