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Connect with NBIA Disorders Association
Researchers, Clinicians, Professionals
  1. The NBIA Disorders Association is the only organization in the United States providing specific support, information and services for NBIA disorders.


    Who Connects with the organization?

    • • A researcher whose work is connected to NBIA disorders, or one who simply wants to learn more about these rare disorders
    • • A clinician who has individual(s) diagnosed with an NBIA disorder or would like to learn more for diagnostic purposes
    • • A teacher who has a student with an NBIA disorder
    • • A therapist who provides support services to an NBIA individual
    • • Other professionals who provide support services to an NBIA individual

    Connect with the NBIA Disorders Association... Tell us about you...

  2. Title
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  3. First Name*
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  4. Last Name*
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  5. Street Address*
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  6. Address Line 2
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  7. City*
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  8. State*
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  9. Postal Code*
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  10. Country*
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  11. Telephone*
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  12. Email*
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  13. Have you contacted the NBIA Disorders Association before?*
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  14. Your Professional Occupation*
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  15. Do you have contact with an NBIA individual(s)?*
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  16. If yes, what form(s) of NBIA do they have? (Check all that apply):














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  17. I wish to receive the 3 times yearly organization newsletter via email
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  18. If in U.S. you may indicate you prefer to receive a hard copy of the newsletter
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  19. I wish to receive information on research grant applications when available
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  20. I would like email updates on NBIA research news
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  21. If a clinician seeing an NBIA individual, I agree to have my contact information listed in a physician directory
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  22. If a therapist, I am interested in being in contact with other therapists in my specialty working with NBIA individuals
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  23. If you reside outside of the United States and there is a NBIA organization in your country, would you like us to also forward your information to that organization?
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  24. Additional Comments (500 characters max)
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