nbia-logo1

English French German Italian Spanish
Text Size

News

Board awards 3 research grants in March totaling $239,680 to study NBIA

Research Grant

The NBIA Disorders Association board is awarding $239,680 to three research projects that received top scores from a pool of 22 grant applications.

Read more...

NBIA research advances with grant awards

Dr. Penny Hogarth

NBIA researcher Dr. Penny Hogarth has been awarded startup funds to pursue a new area of NBIA study and to develop tests for gauging severity of the illness.

Read more...

Focus on Issues Radio

Patricia Wood

President Patricia Wood was the guest speaker on a “Focus on Issues” segment at KECR 910 AM radio station in El Cajon, CA in December.

More/Listen...

SCOPE Summit

SCOPE Summit

Miami, February 4-6, 2014

President Patricia Wood will participate in a panel discussion on "Partnership with Patient Communities to Get from Data to Clinic” at the Cambridge Healthtech Institute's SCOPE Summit in Miami.

Read more...

New Research Grant cycle open for applications

Research

Researchers interested in applying for a grant from NBIA Disorders Association have until October 31 to submit a letter of intent.

Read more...

Two clinical trials underway for PKAN

Clinical Trial

Listed in this news article are two clinical trials that may be of interest to you. Click the button below for more information about them.

Read more...

2013 Family Conference

The Alamo

Record number attend San Antonio gathering and enjoy learning and sightseeing together

Our Seventh International Family Conference in San Antonio was our largest yet, with 120 participants from the U.S., Canada, Australia, Norway, England, India and Japan. That number included 27 NBIA individuals, also a record number.

Read More

 

 

New Google Group Forum for NBIAdisorders

NBIA Disorders Google Group

Our listserv through the Genetic Alliance is no longer available and we have moved to Google Groups.

Read more...