16 pages of the latest news and informative articles including “Seventh International Family Conference News – “Record number attend San Antonio gathering and enjoy learning and sightseeing together,” “Online campaign to raise $135,000 with FirstGiving starts in September,” “Researchers launch imaging study to look at brain blood flow in PKAN,” “What you need to know about home health care,” Know how to tap the media to spread NBIA awareness,” To cope with disability, be active, reach out to others, learn to relax,” “Child neurologists come together in Innsbruck to learn about NBIA disorders.”

Read Newsletter

 

 

Partners

nbia alliance logo1NBIA Cure logoRare Disease Day PartnerRare ConnectTIRCON

Genetic Alliance logoNORDEURORDISGlobal Genes


Disclaimer    |     Privacy Policy    |     Financials    |     Contact Us

Give While You Shop!

Igive.com

G-CFB5FV5NLL