Lake Arthur Country Club, Butler PA
Friday, September 27
Play 100 holes of golf in 1 day! The NBIA Golf Marathon is a day of fun at the Lake Arthur Country Club in Butler, PA. This year, golfers and caddies will raise pledge money to support research and support services that assist children and adults who suffer from NBIA.
Each golfer sponsors themselves for a minimum of a $125 donation and has a goal of $1,250 in pledges. New this year is the opportunity to register as a caddy and a virtual golfer. A caddy must sponsor themselves for a minimum of $75 with a goal of $500 in pledges. A virtual golfer sponsors themselves for $100 donation and has a goal of $1000. Of course you can still play if you do not raise your goal, but we do ask you to try to get as many pledges as possible. Last year we averaged more than $1,000 per golfer. Also new this year is the ability to create your own personal fundraising page, enabling you to set your fundraising goal, post messages, and collect donations online via credit card.
Sept. 1, 2013 – Feb. 28, 2014
We are grateful to everyone who helped make our 2013-2014 Together for Tomorrow NBIA Community Campaign a roaring success.
The campaign raised $243,000, far more than the $135,000 goal we had set. Support came from over 340 individuals and also included a very generous anonymous gift and a corporate donation from our friends at Retrophin, a partner in our NBIA research and a sponsor of our family conference in San Antonio.
Money from the campaign has enabled the board to fund three substantial research grants and to issue a call for a second round of grants this year.
“We are thrilled with the success of the campaign and grateful for the generosity of the NBIA community,” NBIADA Board President Patricia Wood said. “We would like to thank all the donors and volunteers who stepped up to the plate and generously supported this campaign. It’s amazing what we can accomplish if we work together.”
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