Literature
Medical Journal Articles
Newsletter Archives
April 2003 - present

Newsletter Articles:
 » NBIA: who's under our umbrella - December 2007
 » New study on deep brain stimulation shows improvement in all 6 patients - August 2005

 » A date with Sen. Ted Kennedy’s office
- April 2004
 » Tackling NBIA pain with morphine:
    Difficult issue requires much thought - April 2004

 » Manage Your Own Medical Journey - April 2004
 » Botox Injections - December 2002
 » Baclofen Pump Warning - April 2002
 
» Baclofen Pump Caution - December 2003
 » Chelation - March 2000
 » Retinitis Pigmentosa - July 1999
 

Third International NBIA Disorders Association Family Conference
Power Point Presentations
» DBS/Baclofen Pump/Botox - May, 2005 Dr. Penny Hogarth
» OHSU Research Update - May, 2005 Dr. Susan Hayflick
» PKAN study - Allison Gregory, genetic counselor, OHSU
» Understanding genes - Allison Gregory, genetic counselor, OHSU
Conference Presentations:
 » DBS/Baclofen Pump/Botox - May 2002
 » NBIA Genetics - May 2002
News