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Family Support |
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Message from President
» December, 2007
» April, 2006
» December, 2005
» April, 2005
» August, 2003 |
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Networking Program |
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SibsConnect |
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NBIA Families
(pictures)
» Page One
» Page Two
» Page Three
» Page Four
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Family Stories |
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Guest Book
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B5 Experiences
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Ask the Doctor
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4th Int. NBIA Family
Conference
» Conference
overview
» DBS
session
» Pain
Management session
» Research
Update session
» Stem
cells session
» BioBank
at conference
Photo Gallery
» General Conference Pictures
» NBIA Families
» Sessions
» Picnic
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3rd Int. NBIA Family
Conference
» Conference Wrap up Article
» NBIA Quotes
Photo Gallery
» General Conference Pictures
» NBIA families
» Care room
» Saturday Night Dessert Social
Power Point Presentations
» DBS/Baclofen
Pump/Botox - May, 2005 Dr. Penny Hogarth
» OHSU
Research Update - May, 2005 Dr. Susan Hayflick
» PKAN
study - Allison Gregory, genetic counselor, OHSU
» Understanding
genes - Allison Gregory, genetic counselor, OHSU |
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2nd Int. HSSA Family
Conference
» Photo Gallery |
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1st Int. HSSA Family
Conference
» Photo
Gallery |
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First
NBIA Family Conference in Germany - 2004
Third
NBIA Family Conference in Germany - 2006 |
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Helpful
Links:
» Government
» Assistive Technology
» Pharmaceutical
» Non-Profit Organizations
» Parenting
» Wish Organizations
» Travel
» General
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Family
Surveys |
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Memorials |
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