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Memorials

We would like to remember those who have passed away from the disease of NBIA. (Hallervorden-Spatz Syndrome/Disease and PKAN are included here.) If you have a loved one who has died, you may submit a memorial, along with one photo, for this site. It need not be a recent death, but you must be an immediate family member or else get their permission before it will be put on the site.

All memorials should be sent to info@NBIAdisorders.org and permission must be given to edit for content and length.

Information that should be included is Date of Birth and Date of Death, and full name and City/Country where the person lived. 

In Memory Of