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2015 Family Conference

8th Family Conference Heads to Minneapolis

May 28th-31st

Mark your calendars. The NBIA Disorders Association’s 8th International Family Conference will be May 28 to 31 at the Embassy Suites Minneapolis North in Brooklyn Center, Minn.

NBIA Disorders Association’s 8th International Family Conference, May 28-31, Embassy Suites Minneapolis North, Brooklyn Center, MN

Our conference kicks off on Thursday at 5:15 p.m. with registration, followed by a dinner at 6 and our “Getting To Know You” session. We’ve found that holding this session early on is a fruitful way to kick off the conference. Families learn about each other through this ice-breaker and feel comfortable engaging with others throughout the weekend.

We will conclude on Sunday at noon with our traditional closing ceremony

Physician Experts

Our NBIA physician experts will be meeting with families starting May 27, for those who want individual or family appointments, and will continue into Thursday with preference given to first-time attendees. Appointments are limited so they will be made on a first-come, first-served basis to registered participants.

Depending on demand, we may also be scheduling additional appointments after the conference concludes on Sunday, from 1 to 6 p.m. Because some of our doctors will be speaking and attending conference sessions, there will be no family appointments on Friday or Saturday.

Please schedule your appointment early if you want to take advantage of this opportunity to meet with leading NBIA experts and discuss particular issues or treatment options.

Hotel Reservations

Hotel reservations can be made online now at a website set up for our group. Simply click the button below. You may also call the hotel directly at 763-560-2700 and indicating you wish to book under the NBIA Disorders Association room block. Room rates are $114 for up to 2 people and $10 for each additional person.

Hotel Registration

Conference Registration

Registration and family appointment details will be available by the end of February.  They will be announced on the NBIA Google Group Forum, as well as in emails to NBIA families. If we do not have your email address and you wish to be notified when registration materials are available, contact us at info@NBIAdisorders.org.


We are always looking for volunteers to help with conference planning and organizing. If you wish to be involved, please contact us at info@NBIAdisorders.org.. We welcome your ideas and suggestions.


A limited number of scholarships will be available to help defray costs for some who otherwise couldn’t attend. Depending on how many apply and our donations, we may be able to waive registration fees and help with hotel costs. Other travel costs are not covered.

Scholarship & Sponsorship Information

Applications will be available when registration opens in February.

We Hope to See You There!

The conference will include sessions on research and services for affected individuals. We always make time for socializing, which many of you consider a highlight of the conference, and we will hold a family picnic at a local park Saturday afternoon.

We hope to have a record number of families join us in 2015!