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9th Family Conference, June 1-4, 2017, Chicago, IL

Mark your calendars: Our 9th family conference comes to Chicago in June.

The NBIA Disorders Association’s Ninth International Family Conference is set for June 1-4 in Deerfield, IL, just 30 minutes north of Chicago and its many attractions: Millennium Park, the famed Field Museum of Natural History and the exceptional Art Institute of Chicago.

We have outgrown the Embassy Suites, which lacks space needed for larger groups, but we were fortunate to find the Hyatt Deerfield. It has suites and a complimentary full breakfast, making it similar to what we’ve enjoyed in the past. It also offers a hotel shuttle for guests traveling within a 5-mile radius, including a train stop heading to downtown Chicago and other destinations.

We will keep you updated as our plans evolve. We expect this to be our largest conference to date and one you won’t want to miss!

Premier Conference Sponsor

Retrophin logo

Hotel Reservations

Anne Grant, Convention Services Manager at the Hyatt Deerfield, says that families needing to book reservations for handicapped accessible rooms should contact her directly at +1.847.597.4523 to insure they get the type of room they need and that they are still available. The hotel has 8 handicapped accessible rooms with 2 Doubles and 6 King of which 3 have a roll in shower and will be available on a first come, first serve basis.

Also, if you would like to book a room for up to 3 additional days prior to or after the dates available online, you should also contact Anne Grant by phone at +1.847.597.4523 (domestic) or email at anne.grant@hyattdeerfield.com (International) and she will help you add those days to your reservation at our group rate.

Reserve a Room

Appointments with Clinicians & Researchers

We will again offer individual and family appointments on Wednesday, May 31, and Thursday, June 1 with our NBIA expert clinicians and researchers. Appointments are limited and preference will be given to first -time conference attendees. The appointments give families a chance to ask about therapies, genetic testing, changes in function, medications and other concerns. An application for these appointments will be available when the conference registration opens as you must be registered for the conference to apply.


We are grateful to Retrophin, Inc., which again has agreed to be our premier sponsor. We need additional sponsors to help us defray conference costs, which have risen with attendance. We work hard to keep registration fees low and sponsorships help make that possible. Potential sponsors are asked to fill out the Sponsorship Form or contact Patricia Wood at pwood@NBIAdisorders.org or call 619-588-2315 for more information.

Sponsorship Form


Registration materials will be available on our website by February  and will be announced on social media and in emails to NBIA families. If we do not have your email address and you wish to be notified, contact us at info@NBIAdisorders.org.


We will be offering a limited number of scholarships to help families who otherwise couldn’t attend. Depending on how many apply and the funds available, we may be able to waive registration fees and help with hotel costs. Applications will be available when registration opens.


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2017 Conference

Click the buttons below for more information about the NBIA Family Conference 2015.

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Hotel Room Reservations

Help Other NBIA Families Attend

Please support scholarships for needy families to attend conference. If you’d like to help a family who would not otherwise be able to afford the conference, we hope you’ll consider donating to our Conference Scholarship Fund. We appreciate the support this program has always received, and our families are so grateful for this opportunity to connect with others and make lasting friendships.

Please consider a donation today and put “Conference Scholarship Fund” in the “additional info box” so we know to designate it properly.


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