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Ask the Doctor
This page will be dedicated to any NBIA questions you may have for our doctors on the NBIA Disorders Association Medical Advisory Board. Those doctors are listed below. Please visit our Medical Advisory Board page for more in-depth information on each doctor.

Send your NBIA question to info@NBIAdisorders.org. It will be forwarded to one of the doctors for a reply and will then be posted here. We will periodically update this site and list all questions previously handled, without disclosing any names. If your question is very similar to one previously asked, we reserve the right to send you an earlier reply. We also reserve the right to edit questions and replies for this website.

"Click on" this link for the "Questions & Answers" Page
 

Medical Disclaimer:
"While many find the information and experiences that we share helpful, it is in no way a substitute for professional medical care. Our organization does not engage in the practice of medicine. In all cases, we recommend that you consult your own physician regarding any course of treatment or medicine."
 

NBIA Disorders Association Scientific & Medical Advisory Board
 

Director
Susan Hayflick, M.D.
Geneticist & Pediatrician
Oregon Health & Science University
Portland, Oregon

Pierre Castelnau, M.D., Ph.D.
Pediatric Neurology
Clocheville Children's Hospital
Tours, France

Penny Hogarth, M.D.
Neurologist & Asst. Professor
Oregon Health & Science University
Portland, Oregon

Paul T. Kotzbauer, M.D., Ph.D.
Asst. Professor, Dept. of Neurology
Washington University School of Medicine
St. Louis, Missouri

Steven P. Richieri
Senior Vice President
Egea Biosciences, LLC.
San Diego, California
Leslie Shinobu, M.D., Ph.D.
Vice President, Clinical Research
Link Medicine
Cambridge, Massachusetts		 Lu Amy Sun, M.D., Ph.D.
Associate Medical Director
Proctor & Gamble Pharmaceuticals
Mason, Ohio